Publications
“Konijnenmelk, hamstercellen & zingende kwartels” – de strijd om een levensreddend medicijn (Published by Poiesz Uitgeverij, 2024).
Konijnenmelk, hamstercellen en zingende kwartels – Poiesz Uitgevers
“Transformative Effect of a Humanitarian Program for Individuals Affected by Rare
Diseases: Building Support Systems and Creating Local Expertise” in the Orphanet
Journal of Rare Diseases (2022).
https://ojrd.biomedcentral.com/articles/10.1186/s13023-022-02192-1
“Principles and Practice of Child Neurology in Infancy – Chapter 2: Interprofessional Working: User and Carer Involvement”(Mac Keith Press, 201
https://www.mackeith.co.uk/product/principles-and-practice-of-child-neurology-in-infancy-2nd-edition