Publications
“Konijnenmelk, hamstercellen & zingende kwartels” – de strijd om een levensreddend medicijn (to be published at October 28th 2024 by Poiesz Uitgeverij BV).
“Transformative Effect of a Humanitarian Program for Individuals Affected by Rare
Diseases: Building Support Systems and Creating Local Expertise” in the Orphanet
Journal of Rare Diseases (2022).
“Principles and Practice of Child Neurology in Infancy – Chapter 2: Interprofessional Working: User and Carer Involvement”(Mac Keith Press, 201