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CongressGive presentations on the patient perspective in research, medicine development and other related topics at national and international congresses such as European Society for Human Genetics (ESHG) European Federation of Pharmaceutical Industries and Associations (EFPIA) International Conference on Birth Defects and Disabilities in the Developing World (ICBD) World Orphan Drug Conference World Alliance of Neuromuscular […]
PresentationPresenting on rare diseases, the impact of patient participations, patient empowerment at workshops, meetings etc.
EducationProvide education to bachelor and master university students, children and other interested groups about rare diseases, the impact of a rare disease on someone’s life and societ and other topics.
MeetingDiscuss specific topics and issues related to rare diseases with patient organisations and companies.
November 12, 2017
Patient Centered Solutions and Admedicum start collaboration as Strategic PartnersWe are delighted to announce that Patient Centered Solutions and admedicum wil...
May 13, 2013
Transparantie verklaringTransparantie verklaring n.a.v. onjuiste berichtgeving Door recente publicatie...
July 31, 2012
Doveli lekarku iz AmerikeFrom: Blic, Daily magazine Written by: Photography: Serbian newspaper 2012
May 15, 2011
Angel Award 2011Maryze Schoneveld van der Linde received the Angel Award for her unpaid volunt...
April 20, 2009
Spet lahko odloca o svoji prihodnostiPublished by: Dnevik, daily newspaper in Slovenia Published at: 20 April, 2009...
March 2, 2009
Jak odhalit vzácnou nemoc?From: Lidovky (www.lidovky.cz), daily newspaper Czech Republic Written by: Han...
November 10, 2008
Living With PompeFrom: The Star, a Jordanian weekly newspaper Published by: Jordan Press & ...
September 1, 2008
Experts in the art of livingLevenskunstenaars, Experts in the art of living From: Magazine Chronisch Ziek ...
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